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Clinic provides care for internationlly adopted
children
by
Heather Woolwine
Public
Relations
In the U.S., international adoptions surged in recent years from 7,000
children adopted in 1990 to approximately 22,800 in 2004.
With this influx of children also comes an array of medical and health
issues placed on families and communities who welcome them, often due
to the horrific conditions they face during institutionalization in the
orphanages of poor and developing nations.
Andrea Summer, M.D., Pediatrics, and Angela LaRosa, M.D., Developmental
Pediatrics, address the special needs and issues for these children on
Wednesday afternoons in the MUSC International Adoption Clinic (IAC).
The one-year-old clinic serves the needs of adopted children and their
families.
Summer and LaRosa evaluate patients jointly, with Summer focusing on
nutrition, growth, and screening and treatment of infectious diseases,
while LaRosa works with patients in terms of their behavioral and
developmental growth.
“We love these two ladies,” said Jennie Olbrych, an Episcopalian
minister who adopted three children from the Ukraine a little less than
a year ago. “They really want to engage the children and my prayer for
them is that they continue to care and love these children the way they
do for a long time.”
Ruslan
and his mom, right, update Drs. Summer, far left, and Larosa on his
progress since his arrival in America.
Olbrych and her
husband discussed their spiritual desire to expand their family before
traveling to the Ukraine for son Ruslan, 13, daughter Oksana, 7, and
son Maxine, 6. Olbrych learned through her research that because older
children usually aren’t adopted as readily, their chance for survival
is minimal after leaving the orphanage at 16. Many boys resort to a
life of organized crime or drug abuse and many girls become prostitutes
or enslaved. Both sexes suffer greatly from the AIDS epidemic sweeping
Eastern Europe. After learning that sibling groups may not be separated
for adoption in the Ukraine, the Olbrychs decided that while originally
prepared to take one or two children into their home and hearts, they
would in fact take three. “Our biological children, John (15) and Anna
(8), have been remarkably gracious,” Olbrych said. “The literature says
that it takes about a year to really achieve that sense of oneness
within this new family structure and we’re working towards that.”
According to Summer, many internationally adopted children, like the
Olbrych children, were institutionalized for all or a part of their
lives, putting them at huge risk for stunted growth, malnourishment,
abuse, infectious diseases, and an array of behavior or developmental
problems.
“These are children from developing countries that have an incredibly
low per capita income where the orphanages are government run
institutions with conditions that vary drastically,” Summer said. “They
often don’t have adequate nutrition and are neglected. In those
conditions, children can’t grow or develop like they should.”
The most common physical problem that Summer sees in her patients is
the massive delay in growth. However, once the children are here, they
usually experience rapid catch-up growth. In addition to growth
problems, some of Summer’s patients have infectious diseases like
intestinal parasites and latent tuberculosis infection. Screening for
other infectious diseases such as hepatitis B and C, syphilis, and
HIV is also routinely conducted. Even though internationally
adopted children are at an increased risk for these infections,
fortunately, they are rarely present. Some suffered horrific neglect
and physical, sexual, or emotional abuse.
LaRosa sees neglect as the biggest issue hampering her patients’
emotional and behavioral development. “You don’t have to hit or yell at
a child to inhibit their development or growth,” she said. “Not
speaking to them or addressing their emotional needs will achieve the
same thing.”
When patients meet with LaRosa, she conducts a full developmental and
behavioral assessment to discover what milestones the child passed
successfully and those that still exist. Some of the most common issues
she sees in internationally adopted children are sensory integration
disorder, ADHD, learning disabilities and attachment disorders that
range in severity and type.
Most children in normal circumstances develop healthy attachment to
caregivers by ten months of age, but children raised in orphanages
often are neglected or have too many caregivers to form that necessary
relationship. The result might be indiscriminate friendliness or a
child who is too inhibited to seek comfort when hurt or out of sorts.
“I tell our families that attachment is very important and is all about
trust, and children have to learn how to trust,” LaRosa said. “If the
child is experiencing a attachment disorder, I advise families to limit
the number of caregivers during their first year to help the child
beyond the disorder.”
Another concern for most families according to LaRosa is fetal alcohol
syndrome and the developmental delays that can arise from a mother’s
abuse of alcohol while pregnant.
Both LaRosa and Summers work to assuage families’ concerns and
address them as soon as they became apparent, and try to prevent issues
from arising as well. It’s important to both physicians that new
patients come to the clinic within their first two-three weeks in the
United States to allow for early intervention and immediate treatment
of major physical ailments. In addition to the clinic, patients see a
primary care physician for routine pediatric issues.
“It’s important to say that not all of the children we see have
these problems,” LaRosa said. “But they are at an increased risk so the
earlier we identify any problems they may face, the better chance we
have at improving their outcomes.”
“It’s a huge relief to know that we’re dealing with people that
understand the issues that these children face,” Olbrych said. “There
are a lot of pediatricians that are on top of treating
post-institutional children, but during my self-education process I
realized the importance of finding a clinic that wouldn’t argue with me
when I suggested testing for parasites or TB. Sometimes the medical
records the children come with are not accurate, as was the case with
Ruslan. It was great to be able to hit the ground running with the team
here at MUSC.”
Olbrych also mentioned her satisfaction at knowing the clinic was at
MUSC. “It’s wonderful to be able to have a full diagnostic check-up,
along with the behavior and developmental assessments and know that the
resources to further address any problems the children had were all in
the same place. There’s an ease of communication with the clinic, MUSC,
and our pediatrician at (MUSC affiliate) Parkwood Pediatrics.”
Most of the clinic’s patients do well in their new homes, like Ruslan
and his siblings, with the best predictor of their progress related to
the amount of time spent institutionalized. “For every three months in
an orphanage, development is delayed a month,” LaRosa said. “So if a
child has been there since birth, at one year, they will
developmentally be more like an eight month old.”
Once a child is assessed within those first critical weeks, all
patients come back after six months for disease re-screenings, growth
checks and development testing. As a general rule, the younger a child
is once adopted, the better their development will recover. This rule
is not always true though, and is at the heart of what LaRosa and
Summer hope to conduct research on in the future. “There’s not a lot of
long-term follow-up out there for these patients,” Summer said. LaRosa
echoed her, “and it would be nice to have more information on the
outcomes of these children.”
In addition to their regular clinic duties, both physicians also
evaluate potential adoptees as best they can for would-be parents
through medical records, pictures, and sometimes video tape, looking
for evidence of developmental and physical progress or the lack thereof.
As for Ruslan and his siblings, life in America is good.
Ruslan enjoys soccer and American food, noting that he’ll eat anything
that “mom and dad give me.” School is different here, with more
in-class discussion then he was exposed to in Ukraine and less time
confined to a desk. He described the difference in medical treatment
here and in the Ukraine, one of the most notable differences in the way
caregivers treat their patients. “They are much more caring, like when
giving a shot,” he said. “They don’t tie you down here.”
Embracing all that his new life has to offer, by way of everything from
medical treatment to his basics needs, Ruslan kept it simple when he
left the orphanage, “Goodbye Ukraine, Hello America!”
Friday, April 29, 2005
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