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Program serves neediest children,
saves money
A nationally acclaimed program that provides superior health care to
South Carolina’s most needy children and saves the state money is
opening in Charleston.
The Medically Fragile Children’s Program had its genesis in Columbia
and expanded to the Upstate. The new Lowcountry facility is located at
the old Baker Hospital in North Charleston.
Dr. Kara Bleven,
medical director of the Medically Fragile Children’s Program,
teaches David Smith, 5, how to use his stethoscope. Part of the opening
ceremony on Aug. 15 also included a special check presentation.
The Charleston program is a joint effort of the MUSC Children’s
Hospital, South Carolina Department of Health and Human Services and
the South Carolina Department of Social Services. It will provide
comprehensive medical care to children in foster care in Charleston,
Berkeley and Dorchester counties who have chronic illnesses and
disabilities. It is anticipated that after a year or two, the program
will expand its services to all children on Medicaid who meet the
medical criteria.
“We care for the most complex of the chronically ill children,” said
Pat Votava, manager of the Medically Fragile Children’s Program in
Charleston and former director of the Columbia and Easley Palmetto
Health programs. “These are children with more than one chronic
condition. Medically fragile children require a variety of therapies,
medications and medical equipment.”
The Medically Fragile Children’s Program provides primary medical care,
physical therapy, occupational therapy, speech therapy, nursing,
nutrition counseling, medication, supplies, durable medical equipment,
care coordination, family support and education/training under one
roof.
The newly renovated 8,500 square-foot facility houses patient exam
rooms, therapy rooms, consultation rooms, conference rooms for
education and training and a large day room where children can play and
interact in a supportive environment.
But more important than the cost savings, the medical outcomes for
children enrolled in the Medically Fragile Children’s Program are
superior to those for children with a same or similar diagnosis in the
fee-for-service system, Votava said. Another benefit is that
adoption rates have gone up from less than 5 percent before enrollment
in the program to more than 60 percent after enrollment. “To give kids
a family for life is a phenomenal gift,” she said. “Offering
comprehensive services under one roof assists the caregiver. The
families are empowered by the education and training they receive on
how to care for their special needs child, and if they can’t handle
something, they know they have 24-hour-a-day support from the program.”
The Charleston program is an integral part of the MUSC Children’s
Hospital. “This is a huge advantage,” explained Votava. “There is
continuity of care between the Children’s Hospital downtown and our
facility off campus. Our parents already have established relationships
with doctors, nurses and other health care professionals at the MUSC
Children’s Hospital. It makes for a seamless transition for our
children and their caregivers.”
“The Columbia Medically Fragile Children’s Program has put South
Carolina on the map for innovative public/private partnerships in
health care,” said John Sanders, administrator of the MUSC Children’s
Hospital. “While attending a National Association of Children’s
Hospitals conference in Seattle a few years ago, I had an opportunity
to hear a presentation by Pat Votava and her colleagues about
Palmetto’s Medically Fragile Children’s Program. At that time, I worked
at a children’s hospital in another state and I was very impressed with
the collaboration between the state agencies and the hospital. We
are now very excited to have Pat head up our program here at the MUSC
Children’s Hospital.”
The Medically Fragile Program began about 11 years ago when the state
Department of Social Services (DSS) went to the state Department of
Health and Human Services (DHHS) to discuss the issue of special needs
children in foster care who were so medically complicated they weren’t
able find homes for them. Children couldn’t be released from the
hospital because there was no one to care for them, or they kept coming
back to the hospital for lack of appropriate care in a home
setting.
DHHS and DSS made arrangements to begin a program for special
needs children in foster care with Richland Memorial Hospital
(now part of the Palmetto Health System) which already had a
comprehensive geriatrics program where all medical needs of geriatric
patients were addressed at one location. The Medically Fragile
Children’s program began in Columbia in 1996 and now enrolls 80
children. In 2003, another program was started at Palmetto Health
Baptist in Easley, which now serves 70 children in the upstate.
“The S.C. Department of Social Services is happy to participate with
MUSC Children’s Hospital and the S.C. Department of Health and Human
Services in the expansion of the Medically Fragile Children’s Program
to Charleston, Berkeley and Dorchester counties,” said Marcus Mann,
program manager, DSS, who was instrumental in starting up the Columbia
program. “The Medically Fragile Children’s Program not only improves
the medical care for special needs children in DSS custody, the program
also improves their lives and the lives of their foster parents and
gives the children a chance to function more fully in society.”
The South Carolina Department of Health and Human Service also takes
pride in its role both in the Charleston program and the development of
the other South Carolina programs.
“For the past nine years, the South Carolina Department of Health and
Human Services has monitored the progress of the demonstration Palmetto
Health Medically Fragile Children’s Program in Columbia,” said Robert
M. Kerr, director, “The program has had close to a 99 percent approval
rating by care givers in their annual satisfaction surveys while
realizing significant per- child savings over less-coordinated
fee-for-service treatment. Improved medical outcomes for special needs
children and cost savings for the payer result in a model health care
delivery system. We are proud that this program was developed in South
Carolina. We plan to continue to support it and share the information
with other states that have expressed an interest in utilizing this
model.”
The Columbia program boasts a long list of accolades including The
Premier Cares Award, sponsored by Premier and its member hospitals,
recognizing exemplary efforts to improve the health of the medically
underserved, and a $700,000 three-year Duke Endowment grant.
Friday, Aug. 19, 2005
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