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Family Connection of SC, MUSC partner
for FREE
by
Maggie Diebolt
Public
Relations
Many people can not truly comprehend the struggles and rewards related
to raising a child with a disability or special health care need until
they experience those moments firsthand.
In an effort to provide residents at MUSC with a family perspective on
caring for children with special needs, Family Connection and MUSC are
partnering to implement Families and Residents Education Experience
(FREE), a yearlong program that will match second-year pediatric
residents with local families who are raising a child with a disability
or special health care need.
Designed to teach residents the knowledge and skills needed to provide
family-centered care for children with special needs, the program
involves 15 residents and 15 families. Second-year pediatric residents
will observe and interact with a child’s family in different
environments during several visits throughout the year. The visits will
take place at the child’s home, in the community and at a family-fun
outing. The diversity of locations is intended to broaden the
residents’ understanding of non-clinical issues.
“FREE is unique in that it allows residents the opportunity to
understand families and children on a different level and in a
different capacity than what they are taught as medical students,” said
Molly Jones, Charleston area coordinator for Family Connection.
“Residents will learn about what it is like to raise a child with
special needs; what it was like for a parent to learn of a child’s
diagnosis; what daily life is like for a family raising a child with
special needs —school, dinnertime, bedtime, frequent medical
appointments, social events, juggling the needs of a special child with
the needs of other children; and what residents, as medical
professionals, can do to help these families excel to the best of their
potential, both medically and as a family unit.”
FREE started in Columbia in 2001 as a program for medical students who
chose to specialize in pediatrics or in family medicine, and Jones
hopes it will eventually be offered in every teaching hospital in South
Carolina.
Sandra Oberman, Child Life coordinator, supports the implementation of
the program, and said, “The establishment of the FREE program is a
great addition and tool in resident education and for our Family
Centered Care Initiative. Physicians will be able to have a better
perspective into the lives of their patients—the concerns, stresses and
complexities of a child with a chronic long-term illness or special
needs. This first-hand knowledge, out of the hospital setting, should
prove to be invaluable. Participating in even a small part of a
family’s life will provide the opportunity to see their patients as
part of a family system, and not just as a diagnosis.”
Family Connection of SC is a statewide organization that provides
parent-to-parent support to families raising a child with a special
health care need or disability. In addition to the FREE program and
parent-to-parent matches, Family Connection offers an asthma management
program, a program designed to teach elementary school children about
life with a disability, and workshops for children who have a brother
or sister with a disability.
For more information, call 740-5500 or visit the Family Connection Web
site at http://www.familyconnectionsc.org.
Friday, Dec. 15, 2006
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updated
as needed and improved from time to time by the MUSC Office of Public
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for the faculty, employees and students of the Medical University of
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