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Professor comes to MUSC to raise
epilepsy awareness
by
Janelle L. Wagner, Ph.D., and Gigi Smith
Joan K. Austin, DNS, R.N., Distinguished Professor and Sally Reahard
Chair of Nursing at Indiana University School of Nursing, visited MUSC
April 18-20.
Austin has been actively engaged in research investigating psychosocial
adjustment to pediatric epilepsy for more than 20 years. Her research
was funded by the National Institute of Neurological Disorders and
Stroke and the National Institute of Nursing Research. Austin has also
served as the president of the American Epilepsy Society, a group of
clinicians and researchers promoting research and education for
professionals dedicated to the prevention, treatment and cure of
epilepsy. Needless to say, Austin’s work has been seminal in the field
of pediatric epilepsy.
While at MUSC, Austin presented at grand rounds for the Departments of
Neurosciences and Pediatrics. More specifically, she provided
informa-tion on the impact of epilepsy as a disorder, including the
effects of seizures, psychosocial and neurocognitive correlates, and
psychosocial care needs of children with epilepsy and their families.
Austin also presented at the College of Nursing and consulted with
faculty regarding research infrastructure and obtaining federal grant
funding. Finally, she met with faculty from the CON and
departments of Pediatrics and Biostatistics, Bioinformatics and
Epidemiology to discuss individual research proposals and provide
mentorship.
Austin’s visit to MUSC was timely, given the recent efforts to raise
awareness about epilepsy and mental health comorbidities in the medical
and Lowcountry communities. However, much more work is needed in this
area, including education for medical providers and the community at
large, support for families, increased identification of cognitive and
behavioral comorbidities, and facilitation of access to mental health
care.
Epilepsy impacts 2 percent of people in South Carolina, and 21 percent
to 60 percent of children with epilepsy also experience psychosocial
comorbidities. Further, many families coping with epilepsy have
significant stressors due to the experience of stigma related to
epilepsy and barriers to mental health care.
There are several studies currently ongoing at MUSC to examine health
care related outcomes, psychosocial adjust-ment, and access to care in
persons with epilepsy.
For more information, call 792-5983 or 792-3307.
Friday, June 1, 2007
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