among the nation's top institutions for neurological care, MUSC will
serve as the state's lead in the Sarah Jane Brain Project (SJBP).
A committee of seven leading experts in the field of pediatric
neurology reviewed these applications and selected one institution in
all 50 states, plus one in the District of Columbia and one in Puerto
Rico, to become the State Lead Center in their state/territory to
implement the National Pediatric Acquired Brain Injuries (PABI) Plan.
Pediatric Traumatic Brain Injury (PTBI) is the leading cause of death
and disability for children and young adults in the United States. More
than 5,000 deaths occur a year; 17,000 individuals suffer from
permanent disability, and more than 1,000,000 are hospitalized due to
PTBI. PABI cases includes all traumatic causes plus brain
injuries caused by brain tumors, strokes, meningitis, insufficient
oxygen, poisoning, ischemia, and substance abuse.
Started in 2007 by Patrick Donohue, SJBP was named after his daughter
Sarah Jane, who was shaken by her nurse when she was 5 days old,
breaking three ribs, both collarbones and causing a severe brain
injury. Sarah Jane will be 4 years old this week and still cannot walk,
talk, crawl or sit up on her own. Like millions of children in
the United States, Sarah Jane has a traumatic brain injury, a form of
SJBP held an open application period for institutions interested in applying to be a SJBP State Lead Center of Excellence.
In January, more than 65 of the National Advisory Board Members of the
Sarah Jane Brain Foundation came to New York City for a three-day
conference in which they drafted the first-ever national PABI Plan.
That plan called for the development of a national system of care for
children and young adults with brain injuries.
Friday, June 5, 2009