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MUSC
Family
Fund awards campaign grants
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The following departments have received grants from the MUSC Family
Fund through the YES Campaign. For information, call Whitney McLuen,
Office of Development, at 792-1973. To donate to the YES Campaign,
visit https://alumni.musc.edu/yes/.
CARES Clinic—$2,500
The CARES (Community Aid, Relief, Education, and Support) Clinic in
Mount Pleasant is a student-run free medical clinic designed by a group
of MUSC students to meet their educational needs, as well as the health
care needs of uninsured patients in the greater Charleston metropolitan
area. It is the clinic’s goal to increase the number of services
offered to its patients. One possibility is opening the clinic
another night.
Shaken Baby Syndrome
Prevention Project—$2,500
Shaken Baby Syndrome (SBS) Prevention Project will be a
continuation of the project funded by the MUSC Family Fund last year.
It includes a coordinated, hospital-based, parent-education program,
targeting parents of all newborn infants. Preliminary data from the
MUSC SBS Prevention Project indicates a significant reduction in the
number of SBS injuries for children whose parents received this
education.
Sickle Cell Sisters
(Child Life Department)—$2,500
The Child Life Department runs a support group, Sickle Cell Sisters,
for African-American girls who are age 13 to 18 and living with sickle
cell disease. Sickle Cell Sisters helps teenage girls in many ways,
including learning more about their disease, encouraging compliance,
reducing feelings of isolation, offering a sense of belonging, and
providing a safe place to share feelings and frustrations.
Diabetes Discharge
Project (Pediatrics)—$2,500
The Diabetes Discharge Project provides access to one month’s
diabetes supplies for newly diagnosed patients who are uninsured and/or
underfunded. The project would cover the time gap between application
for CRS and Medicaid assistance and the start of coverage by those
programs, which is usually one month. This would enable patients
to have a timely discharge with all supplies needed to manage diabetes
at home and at school.
Passages (Children’s
Hospital Bereavement Committee)—$2,500
Passages (Parent and Sibling Support Affecting Grief Experiences)
Program provides bereavement support to families at the initial time of
loss and through letters, poetry and resource guides for 15 months
following the death of a child.
Can-Teen (Pediatric
Hematology/Oncology)—$2,500
Can-Teen is a support group for teenagers with cancer, ages 12 to 18.
The group provides coping support for teens by providing opportunities
for building positive relationships with one another. Can-Teen members
participate in projects, meetings and retreats, which are designed to
facilitate communication, therapeutic expression of emotions, and a
sense of community within an intimidating medical world. This year
Can-Teen was given the opportunity to utilize a private house on
Sullivan’s Island for retreats. Grant support from YES Family Fund
would allow Can-Teen to have retreats here on a regular basis.
Autism Centered
Clinic Project (RT1 Children’s Specialty Clinic)—$1,042.80
RT1 Children’s Specialty Clinic has worked hard during the past year to
improve the facility for pediatric patients by repainting, adding toys
and installing a television in the waiting room. The patient response
has been very positive, except for one special group of patients.
Inadvertently, clinic conditions were made unbearable for the autistic
patients. To aid these families who have multiple medical and therapy
appointments, one Friday afternoon a month will be designated the
Autistic Friendly Clinic. There are no simultaneous clinics at that
time. The television will be off and lights dimmed. There will be a
reduced schedule to keep wait time at a minimum. Funding is
sought to tailor the three exam rooms with rugs, soft classical music,
and appropriate therapeutic toys.
Child Abuse Patient
Assistance (Pediatrics)—$2,500
MUSC has a child-abuse, medical assessment team trained to provide
acute sexual assault exams and evidence collection for children ages
birth to 17. The medical team works in close collaboration with two
child advocacy centers to provide comprehensive outpatient
assessments to children in Charleston, Berkeley and Dorchester
counties, as well as surrounding counties. For caregivers, the cost for
medical assessment is prohibitive. The Department of Social Services
has no capacity to pay for evaluations for children who are not foster
children. A patient assistance fund is needed for families without
other financial assistance to obtain assessments in suspected child
abuse or threat of harm of child abuse. It is anticipated that a
patient assistance fund of $2,500 could help 25 -30 patients obtain
needed child abuse medical assessment services.
Ozzie’s Project
(Child Life)—$2,500
Ozzie's Project is designed to provide resources and services to
alleviate the inherent psychosocial stressors generated by physical
isolation during hospitalization. As the project moves into its second
year, it intends to continue current services and expand the patient
population served with the inclusion of the Infant and Toddler
Medical/Surgical Unit (7A).
Bears for Kids
(Craniofacial Anomalies and Cleft Lip Palate Clinic)—$1,500
Bears and Books for Kids is a program to make the clinic visit less
stressful for patients by providing educational materials, including a
cleft lip bear to empower parents to become partners in the care and
management of children with cleft lip and palate or other craniofacial
disorders, and to provide the affected child with a unique form of
emotional support in the shape of a bear with a cleft lip repair. The
objective is to engage the parents as partners in the treatment of
their child. Feeding and weight gain are two potential crucial issues
that occur when a child is born with cleft lip and palate. The
instructional booklets discuss the issues and provide insights and tips
to the parents to overcome this initial difficulty.
Child Life Bone
Marrow Transplant (BMT)—$2,500
The BMT program serves children, birth to 18, to help them navigate
their hospitalization with empowerment and the appropriate coping tools
and education, so that it may be a positive life experience. The main
focus of Child Life intervention with BMT patients is to provide
education, preparation, therapeutic intervention, empowerment and
companionship. Common activities include planning and implementing a
celebration with the patient and family for transplant day, specialized
cooking projects, unique art and scrapbooking activities for expression
of feelings, safe materials for release of anger and anxiety and
personalized items that increase feelings of normalcy.
BRAVO Breastfeeding
(MUSC Perinatal Services)—$2,499.80
The Neonatal Services Team provides life-saving care for preterm
infants and sick newborns. The team continuously works to optimize
infant care, including providing support for mothers who wish to
breastfeed. Funds are being requested to purchase two additional breast
pumps for postpartum, hospitalized mothers who are pumping for infants
who cannot breastfeed due to their need for medical care.
Friday, June 18,
2010
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